Tag: ulcerative colitis

Rumor of Love

Monday morning, and the first infusion to treat the ulcerative colitis. I have no idea what this is going to be like or what it will do to me or how it will make me feel for the rest of the day, so who knows what is in store for me today? I did do some reading–interestingly enough, the treatment I am getting is also the treatment for plaque psoriasis, which I also have (it’s been under control since I got some steroid shots for it last year)–and there are some side effects to the treatment, which I hopefully won’t experience, either. The part I always forget is that I am immunocompromised now, and the medication will also negatively impact my immune system. I have to be very careful going forward about getting sick, need to have my liver monitored, and I also need to beware of tuberculosis. But after the infusion I am heading into the office for the rest of the day, so we’ll see how that goes.

I didn’t write much yesterday (like a bad boy) but I will tonight after work, depending on how I feel from the transfusion. I did get some things done around here and took a lot of notes so progress was made, but we basically spent the day watching the end of The Good Girl’s Guide to Murder, which was fun; Julianne Moore’s dark new movie on Apple Plus, Echo Valley, which was interesting; before moving onto a Spanish-language Mexican show on MAX, Coyotl: Man and Beast, starring our old Spanish-language crush, Alejandro Spiezer. I also finished Incident at Loring Groves (more on that later) and picked out Sing Me a Death Song by Jay Bennett (my favorite y/a writer of all time; definitely more on that forgotten crime master later) to be my next y/a read. I’m taking Summerhouse with me to read during the infusion; two to two and a half hours of being forced to lie down with an IV in my arm is a good time to read, don’t you think?

We also had some marvelous thunderstorms last night; there was a major one, with some of the longest thunder I can recall. It was one of those “lots and lots of rain in a very short period of time” storms we have here all the time, which is a kind of tropical rain, I suppose. I slept really deeply and well–didn’t want to get up this morning, frankly, which made Sparky the Hungry Alarm Cat very agitated. He was very cuddly last night, too, as I sat in my chair writing notes in my journal; he climbed up and gave me some head butts before wanting head scratches, collapsing his entire body into me and not letting me stop scratching his head for about half an hour before it was bedtime. I like that he is finally becoming more affectionate and cuddly as he gets older–although he can flip into demon cat who wants to play rough at any moment. Usually head scratches devolve into him playing with fangs and claws out within seconds, so I was a bit surprised at how long he put up with my affection last night.

LSU plays UCLA tonight in the College World Series at six tonight, so I’ll have to get home from work quickly tonight so I can get some things done around the house before the game starts.

I feel rested this morning, and this isn’t a very long week. I only have to go into the office or three days this week with the holiday falling on Thursday this year, which is kind of nice. I need to get some writing done–I probably won’t finish everything I want to send out for submission calls, because I won’t make the deadlines, but that’s nothing new. I was looking around yesterday, trying to remember all the stories I’ve not finished that might work for submission somewhere (picked one out for Ellery Queen), and remembered even more as I filed and put things away last night. It’s also weird how my short stories often veer into the occult and the macabre. I also, when going back to something I’ve not worked on for a while and thus have new eyes to bring to it, am amazed at how quickly I can see what is wrong with the story and why it doesn’t work–and often, it’s because of the tone and the voice.

Ah, well, time to get cleaned up and head out on the highway for today’s infusion. I doubt I’ll be back today, so will let you know how it went tomorrow morning. Have a great Monday, Constant Reader!

Queen Hatshepsut, Egypt, Grand Egyptian Museum

Gorgeous

Well, yesterday was a disruption from the usual routine, wasn’t it?

The water was out at the office, as I may have mentioned as an addendum yesterday, so we couldn’t see patients and we all got an unexpected remote day. I hadn’t slept well Sunday night, so I was a bit tired and not a bit sorry to work from home, shamefully. I did get some work done, and I also loaded the dishwasher and got that chore finished. I also cleaned out the refrigerator, got rid of some old things close to turning, and reorganized it in there. I was still tired for most of the evening, but am pretty pleased with what I did manage to get done.

I hate starting out the week tired like that. I also was, I think, in calorie deficit and hadn’t brought near enough food to work to stave that off because I was starving when I got home. I stopped on the way home to get peanut butter and Creole tomatoes (they are sooooo good; I love Creole tomato season), and made a massive gyro when I got home. And was hungry for dinner, later, too. I can’t remember eating this much, ever, in my life before. And since I have disordered eating habits1, I do worry about eating so much and trying to gain weight, since it has been antithetical to my mental state and self-image of you need to lose some weight for so fucking long.

It’s very weird to be in my mid-sixties, yet still thinking about my disordered eating and body image issues. I used to think when I got older that would all go away. But it really didn’t, did it? I slowed down and did gain weight, of course, between fifty and sixty, and wondered if that was it, you know? But it would rear its ugly head in bad eating habits again, always. Conferences are dangerous for me because I will literally forget to eat–although I am doing better about that (he says, despite falling into the worst illness of his life after his last conference–but they were not related, much as I thought they might be; the dehydration and exhaustion exacerbated the UC).

But I did sleep well last night and feel good this morning. LSU managed to come back from the 5-1 deficit they faced after the second inning to win 10-6 (GEAUX TIGERS!) and now it’s on the Super Regional to see if they make it to Omaha and the World Series. How exciting and fun for them! Thanks, boys! A few more weeks of baseball are in the offing, which is always fun.

I did actually get some writing work done last night, too–not actual writing per se, but prep work. I also did some thinking about other stories and projects that I am currently working on, which was very cool, and I started reading Summerhouse, which was a very pleasant surprise, as the main characters are older and have been together for forty years; the book opens on their fortieth anniversary, and it’s kind of interesting read. (I’ve been thinking about writing about older characters since reading Laura Lippman’s Murder Takes a Vacation, and so that’d been on my mind.) I’ve not gotten very far into it, but will read some more of it tonight when I get home, as well as advancing in both The Dark on the Other Side and Mystery of the Haunted Mine.

And maybe–just maybe–I can get some actual writing done. I almost finished today’s Pride newsletter last night; I need to look it over and make changes and write probably another paragraph or two.

And on that note, I am heading into the spice mines. Happy Tuesday everyone, and I’ll be back tomorrow or perhaps later. No one knows.

The gorgeous Steve Reeves, mid-twentieth century bodybuilding champion and star of Italian muscle movies.
  1. Not the same thing as an eating disorder; disordered eating is simply a bad relationship with food and eating, which I have had my entire life–there will be more about this to come. ↩︎

I Shall Be Released

I was sent home from the hospital yesterday morning. I have ulcerative colitis; which falls under the “irritable bowel syndrome” family of gastrointestinal disorders. As bad as I was, it could have still been worse. The significant weight loss (which all my gay male friends wanted to know the secret–um, do not recommend) was intense and scary; when I saw the specialist Tuesday afternoon he saw my tests results and admitted me immediately. I wound up spending six days in total in the hospital; a “forced vacation with rest”, as a friend put it. It was weird; I’ve never been attended to hand-and-foot that way before, let alone hovered over and monitored–well, by anyone outside my mother. Almost every one of the nurses at some point mentioned how nice I was and such a lovely patient to work with–see how sick I was? At the same time, I was always polite, didn’t ask them to do much for me, and always said please and thank you. Do people not have good manners anymore? You’re taking care of me, of course I’m going to treat you with respect.

But it’s nice to know what is wrong at last, and even nicer to know there was nothing I could have done to prevent it from happening. I went back on solid food after the colonoscopy–bingeing television means lots of food ads; I don’t think I’ve ever been that hungry before–and I do feel much better. I’m still weak from the weight loss, and perhaps not as steady on my feet as I should be, but I was also pretty much in bed for a week, so not that surprising, really.

I also feel rested, which is nice, and has been a while since I’ve felt this way. Another reminder that I need to take better care of myself, and pay more attention to my body when it’s trying to tell me I am reaching a flashpoint. I did have a mental collapse during the illness, but it was also before I went into the hospital. I did get also get a cool idea of how to repurpose a failed novel manuscript, but for the most part I turned my brain off and let it relax. I have no idea what’s going on in the rest of the world (other than an American pope with New Orleans ties), and I kind of don’t want to find out.

I also am taking this week off from writing stress.

And now, I am going to head into the spice mines. Have a great Monday, and I’ll be back in the morning.