Tag: arterial tortuosity syndrome

Call Me

Wednesday morning pay-the-bills day blog, and how are y’all this morning?

Yesterday was ever so much better than Monday (low bar) but I slept really well Monday night and felt very rested and centered yesterday as I went to work. Hilariously, as I walked out to the car in my Prevention T-shirt, I felt a bit chilly. When I got into the car it felt downright cold, and once I started the car the a/c started blowing and YIKES! So I quickly switched it over to heat…and as the lovely warm air began blowing through the vents, I saw the thermostat on my dashboard reading 70–it was seventy degrees and I felt cold. But…for well over a month–an endless summer–of temperatures that felt like 110-120; 70 degrees is a forty to fifty degree drop. That is actually a significant drop in temperature, and one that would certainly be felt as cold anywhere.

I have to go uptown to get a sonogram this morning (and no, I am not pregnant). This has to do with the genetic heart defect Mom had; they want to see if I have the same problem (technical term: Arterial tortuosity syndrome) so if things start going haywire with my blood pressure and so forth, they’ll know where to start (it took weeks for them to figure out what was wrong with Mom after her initial stroke). I think part of the reasons I feel so off this week, while exacerbated by the lack of sleep and driving this weekend, has been subconsciously felt anxiety about all these medical tests and things I am having done; plus Dad’s birthday was yesterday and Mom’s is tomorrow; these are their first birthdays with her gone, so it’s going to kick a little harder, which is only natural, I think. I was also productive in that I ordered our new refrigerator this morning to be deliverer on Saturday (yay!) and I registered for jury duty. Of course this is the perfect time to be called for jury duty–when I have a million doctors’ appointments and a surgery scheduled–and of course, you have to show up in person to try to get out of it, which means getting a doctor’s note and showing up at the courthouse on Friday. I can do that, of course–but it’s just more pain in the ass shit to do on a day when I already have a doctor’s appointment. I suppose I could just go there after the appointment. I don’t know. It’s just more irritation on a week where I’d rather not have more irritations. (The MRI is scheduled for Friday morning, that’s what it is.)

Heavy heaving sigh.

I wasn’t terribly tired when I got home yesterday from work, but I didn’t seem to get very much done. I did spend some time reading more of the Sager novel; I’d like to get that finished this weekend at the latest so I can move on to the Elizabeth Hand, the reread of Shirley Jackson, and Infested by Angel Luis Colon. I should, I think, be able to get them all read by the end of the month; I may even have the time to revisit The Dead Zone by Stephen King, which I’ve been meaning to do since the 2016 election. I’m still trying to get a grip and handle on everything, but it’s hard to do with all of these tests and appointments and everything to stress about, even if I try to let it all go it’s still there working away at my subconscious. I also don’t understand why I am so reluctant to face the fact that I am still grieving my mom, seven months later, and her birthday is tomorrow; something else I need to unpack, I suppose. But progress is being made on everything, and of course I am delighted to be getting a functional refrigerator at long last.

Which means I get to spend Friday partly getting the apartment ready for a refrigerator delivery and installation and removal of the old one; which means moving all the food over to the carriage house Friday evening.

I was also thinking back to precisely when I lost the reins of my life and when I started being discombobulated and losing control of my own narrative. I think the stress truly began taking off after buying the car in 2016; the car payments wreaked havoc on my finances and put me even further into debt, which was something I was very concerned about for several years, obviously (still am, but am paying it all down and feel a lot better on that score). Then came the Great Data Disaster of 2018, when I lost all the back-ups and my desk top computer stopped functioning properly; I wasn’t able to afford a new one (thanks to the car payment wreaking havoc on my finances) which also didn’t help–a computer that was super slow, crashed and/or froze up all the time, and was barely functional for what I needed didn’t help–and of course by the time I paid off the car and was able to buy a new computer we were deep into a pandemic and I was doing all that volunteer work while barely holding onto my own sanity by my fingernails. That was also the period of time (2016 on) when the filing got out of control as did my computer files; so now trying to climb out of the wreckage is a Sisyphean task, apparently; I never feel like I am caught up on anything because there’s so much fucking mess to straighten up and organize, and I can never just take a few days to even try to dig out from under the mess because there’s always something else going on that needs attention right now.

These are the things I was pondering as I sat in my easy chair last night watching videos on Youtube–documentaries about the Hapsburgs again–and waiting for Paul to come home. I find that I’ve become a lot more introspective about my past lately (since turning sixty, really) as well as working on unpacking things and understanding why I am the way I am a lot better. I’ve spent most of my life trying to work on myself and become a better person–reading, thinking, watching, etc.–and admittedly, not always succeeding; but a lot of that is because I’ve not looked back and unpacked things I’ve experienced or went through. I’ll give you a case in point: one night during Boucheron I was sitting with my friend Teresa at the pool bar during happy hour enjoying their amazing nachos when Lou Berney joined us. As we talked, he asked us both if we’ve ever come close to death before–close calls. I’d never been asked that before and I really had to think. And while Teresa was answering about a car accident situation where she was almost killed, I remembered an experience I had when I was twenty. I related the story and they both looked at me, eyes open wide, and were like “Jesus fucking Christ, Greg!” I hadn’t really thought about that incident in a really long time; I had started writing a blog entry sometime in the last ten years (it’s still in drafts) where I talked about that experience–it is one of the reasons I am so anti-gun–but other than that…no. But having that brought up into the forefront of my mind, I realized something.

I had never expected to live this long, and I’ve always had the feeling that I would die young. I don’t know if this is a common thing for people or not, but I have just always had that thought in the back of my mind for most of my life–when I’d think about the future, I would always stop because why think about it when you’re going to die young? I gradually began to believe that was because I lived through the 1980’s; the HIV/AIDS thing. But after remembering and talking about that incident back in 1982, I realized that after going through that was when I began thinking I wouldn’t live very long; the arrival of the “gay plague” right around the same time didn’t help much in that regard either. I’m not being coy in calling it the incident–tl;dr: the husband of one of the managers at the Burger King I worked at went over the edge and came into the place and shot her multiple times (today he would have had an automatic weapon and I would have died that day, or been wounded–because that’s not what this post is about and I do want to finish my draft post where I go into more detail.

And on that note, I am heading into the spice mines. Have a lovely day, Constant Reader, and I’ll check in with you again tomorrow, if not later.

San Francisco

Tuesday!

I didn’t want to get up this morning–Tug the kitten also has the same superpower that Scooter had, which was lulling us both to sleep somehow; he fell asleep in my lap last night while we were watching television so I, too, fell asleep. There’s really nothing like a nice warm little kitten sleeping in your life for calming purposes. Scooter was also an anti-anxiety holistic medication for me, so it’s nice that Tug (still not sure about that name, but it may change to Tiger) works the same way with his little purring engine. He’s so cute! I’m glad we rescued him and I’m glad we got a kitten–because I’d forgotten how adorable kittens are. It’s so cute watching him practice being the Big Cat Hunter and pouncing on his toys after sneaking up on them. He also remains completely fearless, which is great. I’m glad he already feels so at home here in the Lost Apartment.

I also recognize that this is turning into a kitty stan blog, which is very understandable given that we have a new kitty.

Yesterday was a relatively relaxed one at the office. I’d forgotten that I’d been filling in for someone who was out on medical leave for the last two months, and that he was coming back to work yesterday. I was mentally prepared to spend the day working with clients and doing my other duties around the appointments, which is what I’d been doing for the last two months all four days in the office. I’d literally forgotten that Monday was my catch-up day in the office when I usually took care of all the things I started doing between appointments for the last few months because I no longer had Mondays free to catch up on everything. It’s going to take me a moment to get used to this again, but it was nice. I left the office and came home and just immediately collapsed into my chair. I’d intended to spend some more time with the Riley Sager book, but for some reason didn’t pick it up and instead spent the evening doom-scrolling through social media while Tug slept in my lap and I waited for Paul to come down. We started watching a new show on Apple, Inside Man, which had an exceptionally good cast led by David Tennant, and opens with Tennant, as the vicar, getting caught up in a very bad situation due to him not only being the vicar but having to think very quickly on his feet–a member of his flock, who has a horribly abusive and vile mother–pressed a flash drive onto him as his mother was coming for a visit and she “always” found his private stuff. When Tennant’s son’s maths teacher (see what I did there?) arrives and opens her laptop, the flash drive gets connected to her computer and the son claims it’s his, covering for his dad while not knowing what was actually on it–which was child pornography. This puts Tennant into a quandary of faith. It’s not his son’s kiddie porn, but ethically he cannot say where it came from; and the show ends with her locked in the basement and knowing that he’s going to have to kill her because he can’t let her go. It’s very interesting–there’s also a side story with a reporter the teacher encountered on the bus and two men on death row (one of them played by Stanley Tucci) who are also somehow connected to the same reporter. It’s very cleverly done, the interweaving of stories based on random encounters, much as they occur in real life.

I worked on a short story yesterday but of course it’s one I don’t have a market to send it on along to for submission, rather than either of the ones that are being specifically written and/or revised for actual calls–because of course that’s what I always do. I’m beginning to feel like I am falling behind on the publishing of short stories I’ve written, but the truth is it’s just my anxiety spurring my brain along. I’ve published two short stories this year, “The Ditch” in School of Hard Knox and “Solace in a Dying Hour” in This Fresh Hell, two stories of which I am really proud and also skate along the edge of supernatural horror. I don’t think I write actual horror, but more suspense with supernatural occurrences in them. I don’t do jump scares or anything like that, but rather mine are told with mood and setting more than anything else–and of course, voice. I’m also stuck on this story anyway–as always, in the second act–and so will move on to the stuff that, you know, actually has a market/call to send them into. I need to work on my story for the Bouchercon anthology, due by the end of the month, and I also have one for my Sisters chapter anthology that I’d like to get finished and turned in as well. (I love my Sisters chapter, by the way.)

Sigh. Being a writer can be quite a joy sometimes. It’s no wonder so many of us drink to excess.

Tomorrow I am getting a sonogram to see if I have the same heart defect my mom had. She had arterial tortuosity syndrome, which, if you follow the link to rarediseases.org, is described thus:

Arterial tortuosity syndrome (ATS) is an extremely rare genetic disorder characterized by lengthening (elongation) and twisting or distortion (tortuosity) of arteries throughout the body. Arteries are the blood vessels that carry oxygen-rich blood away from the heart.

I don’t remember which artery it was, but I think her femoral artery came out of her heart and inside the chest cavity, instead of being straight it was twisted into a candy-cane shape, which meant when it clogged, it was an extremely complicated procedure to put a stent into it; and when the stent clogged, it was too complicated to put another one in…and then she had the massive stroke and died in hospice. The key words in that paragraph from rarediseases.org are “extremely rare genetic disorder”, with an emphasis on genetic. My maternal grandfather died in his sleep in his forties, and we really don’t know why. Obviously, this is concerning for me, and the fact that my former primary care doctor’s attitude was “we’ll worry about that when we have to”–which, while making sense since nothing can be done about it, isn’t reassuring from a medical professional–and I’d frankly rather know if I have something wrong that could eventually kill me. Since bad cholesterol clogs your arteries, the fact that the cardiologist immediately put me on stronger medication than I had been using for the last fifteen years kind of told me that my primary care wasn’t paying much attention to that, either. It made sense, right? If my bad cholesterol is close to the amount that is concerning, and the medication I am taking isn’t doing more than keeping it from going into the danger zone, maybe give me something stronger after fifteen years? Malpractice doesn’t actually have to be malice; it can also be carelessness.

And yes, I am very aware of the irony of the fact that part of my job entails encouraging my clients to strongly be advocates for themselves with their health care–practice what you preach, right? But I’d been feeling dissatisfied with my primary care provider for quite some time now, and this stuff from this year was the last straw for me.

And on that cheery, uplifting note I am heading back into the spice mines. Y’all have a great Tuesday, all right?